Merry Christmas

12/26/2013

I hope you were able to spend the holidays with your loved ones in joy and happiness.  Fortunately, by afternoon on Christmas, I was able to get out of bed and enjoy time with my family.  I am so appreciative of my family’s support and flexibility around these holidays.  It’s been rough on everyone and the stress and emotional toll has been felt by all.  It’s been awhile since I’ve been able to give you an update and wanted to get one out soon, despite this being short and to the point.  

Unfortunately, things have been a challenge.  The pain continues to be quite intense.  I find relief by seeing my Acupuncturist and sitting in our hot tub, along with using several pain medications.  Most of the time you can find me surrounded by an assortment of hot packs also.  My bowels are still very sensitive and I am eating little.  Ironically, I have found organic cottage cheese to be a friend.  The nausea/vomiting has been sporadic so it’s been very difficult to keep up with my fluid intake.  Plus you have to be awake to consume liquids and I spend the majority of my days sleeping.  My kidney function is now showing some signs of the effects from the dehydration.   

I’ve had two rounds of chemo, both with a medication called Gemzar (Gemcitabine).  This is one of the chemo medications I had during my second treatment of chemo last spring.  At that time it was very effective, in combination with another medication, to clear the cancer quickly.  Of course, the cancer unfortunately also returned quickly.  With my most recent blood work this week, the Gemzar has been deemed ineffective this time.  After two rounds, the cancer tumor marker has continued to increase another 100 or so points.  I’m scheduled to have chemo again tomorrow with the plan to change to another agent called Topotecan.  The goal will be to have weekly treatments of the Topotecan.  I’m anxious to feel relief of all the pain soon, but still feel uneasy about “needing” chemo.  

I muster up enough energy at least once a day to work on “me” in the mind/spirit realms of treatment. I love using Byron Katie’s The Work to challenge all of my beliefs.  For example…it would have been natural for me to develop fear and feel hopeless with the chemo not having the “hoped for effects” so far.  BUT, in using her work I am reminded that just because one method did not work, does NOT mean that I’m following the path of most women with ovarian cancer where all available chemo agents are exhausted without suppressing the growth of the cancer.  I cannot know, beyond a doubt, what will happen to me.  Regardless of what has happened to many others, regardless of how many treatments are needed or not.  I am reminded to stay present in the NOW.  To stay aware and in gratitude of what my reality is in this moment and just how many things are working effectively.  I’m not saying this easy, but it’s been the best thing for me to keep from feeling completely hopeless.  

I thank all of you for your continued support and thoughts of well being for me.  

In love and gratitude,

Denise

12/4/2013

If you’ve been waiting for my update, based on my last blog entry, I thank you for your patience.  I’ve been trying to complete this entry for sometime now and just can’t seem to do it.  Hopefully today is the day.  I’ve done a lot of processing over the past few weeks and spent 15 beautiful days on a healing vacation in November that I’m so grateful to have experienced.  I’m now ready to share. 

On November 5th, I travelled down to Akumal, Mexico in the Riviera Maya, about 60 miles south of Cancun.  The organization, Healing Journeys out of Sacramento (healingjourneys.org) was holding a healing retreat at Tao Inspired Living Wellness Center.  If any of this sounds familiar it is because I went on a similar retreat last year with Healing Journeys to Tao and Tao is ran by Jonathan Ellerby (the organizer for the trip I took to Africa).  Fortunately, I had the courage to ask Jonathan if I could have an opportunity to speak to the group.  As many of you know, speaking is a new passion for me and one I choose to continue to pursue as a career.  On a funny note, it also meant that on my speaker’s resume, I could now list an international venue.  Yes, I am now, technically, an international speaker.  Jonathan asked that I speak about my journey and tools that I’ve learned along the way.  I spoke on subjects of joy, self-love, living life fulling, and techniques to use to change limiting beliefs.  I felt great about the presentation, and received wonderful feedback, as well.  Besides the wonderful sessions of the retreat facilitated by Jonathan, I was also able to swim with the sea turtles, see the ruins in Tulum, visit the beach, play in the ocean, and enjoy the company of a wonderful group of people.  

From Cancun, I flew to Washington DC to visit my friend of 37 years, Sonja.  She has 8 month old twin girls, who happened to have their first tooth break through while I was visiting.  Despite the fussiness you would expect with teething twins, the girls were, overall, very happy.  Sonja and I had many opportunities to sit and chat as she dealt with the many needs of the girls ALL day long.  Over the past three years, I’ve dealt with grief over losing my own fertility with the cancer.  At this moment, I realized what a challenge it would have been to focus all my energy on my healing if there had been a small child in my life.  I felt very grateful that I never had to deal with feeling torn between caring for myself and feeling like I couldn’t give my complete care to a child.  A definite highlight of my trip to the DC area was Sonja taking me to this place called Spa World.  It is now one of my favorite places in the whole world.  In addition to the healing Bade Pool with ionized jetted water, there are 7 different poultice rooms that provide healing and detoxing through natural material and stones.  It was wonderful!

From DC, I flew to Boston for the Infinite Possibilities workshop with Mike Dooley.  Are any of you familiar with messages from the universe through TUT.com.  The message is your thoughts become things and by directing your thoughts you can help life take the direction you intend and desire.  I am now a certified trainer in Infinite Possibilites and can facilitate workshops if anyone is interested in putting together a group of people who would like to change how they think and how to help to make their dreams come true.  

I hopped on a short flight from Boston down to New York City to visit another friend of 37 years, Adam.  The hospitality Adam offered was beyond what I could have ever imagined.  He had truly gone the extra mile.  We were able to enjoy the 9/11 Memorial, the Cloisters, the High Line, Wicked, The Metropolitan Museum of Art and lots of time just catching up with each other.  

As healing as the whole trip was, unfortunately, it was trumped by increasing pain.  I had a little bit of pain on/off prior to leaving, but 5 days into the trip the pain began and never let up.  It was unbelievable to me how intense in such a short amount of time the pain took over.  I felt desperate for relief and to know what was going on in my body.  I emailed by oncologist and asked to have a PET scan set up for when I returned.  I gave myself permission to change my travel plans at any moment and go home if I felt the pain was too much and I was no longer having fun.  Through that permission I was able to take it day by day, at times moment by moment and truly enjoy each opportunity I was able to experience without taking anything for granted.  

The lab work upon return jumped much higher from 53 to 221.  And, as expected, the PET showed cancer growths throughout my abdomen once again.  Considering the huge amount of pain, I started chemo immediately on Nov 29th.  The past few days have been rough.  I will write more as I feel better but I felt pressured to at least let everyone know what was going on.  I appreciate any healing energy you can send my way.  

In love and health,

Denise

Statistical Odds

10/25/13  What percentage (no pun intended) of your life involves odds and statistics?   When I walked into the living room the other day (October 14th, to be exact) my Dad was watching Sports Center.  The news caster was reporting on the amazing feat of the two Boston teams the day before: The New England Patriots and the Boston Red Sox.   It was a different type of sports report in that the newscaster was giving a statistical percentage of a win at each highlight of the game.  New England was winning throughout the game but the Saints went ahead towards the end.  New England won with the last throw of the game, a 17 yard touchdown pass in the end-zone.  Then they flip to the come back of the Boston Red Sox who were behind 5 - 0 in their playoff game.  They score one run and the newscaster gives the statistical probability at that time of a win.  Then in the bottom of the 8th Ortiz hits a grand slam home run.  In any game a grand slam is absolutely exciting (I have had the privilege of witnessing one in a live game in 2010 with the San Diego Padres hitting one off of the Los Angeles Dodgers...SWEET!!!) but in a playoff game where the chance of winning is looking pretty dim a grand slam will light up any stadium.  So the Red Sox are now tied 5 - 5 with Detroit.  In the 9th they finish it off with a walk off run to win 6 - 5.  The newscaster then says: “0.2% chance of both professional ball teams in Boston to come back with a win yesterday. 0.2%.” 

I don’t share any of this because I’m a huge sports fan and love an exciting come back story (although I do).  Or because I’m a Boston fan and am elated for their wins (because I’m not).  I share this because today I was devastated.  I saw my medical oncologist.  I started the visit by saying I was not happy with my latest CA 125 #.  He said he was not happy with it either.  He explained that it is an early trend but the numbers do seem to be trending as if the cancer is growing again.  These were words I was quite aware of being shared at this visit, but they still hit with a very hard blow.  He went further to say that he would like to do another PET scan in 3 months, because once the numbers start trending up, it takes about 3 months to show evidence of the disease on a PET.  He even when further to talk about starting chemo again at some point.  All I wanted to do was yell shut up, run out of the room, and cry.  But I didn’t.  He recognized that he was aware that I didn’t want to think about starting chemo.  I asked if we would do the same chemo medications.  He said yes since they were very effective.  I looked puzzled at him since I don’t consider cancer growing again within 2 -3 months after chemo stopping, EFFECTIVE.  He said, “You’ve had a good few months.  I know you want more, but you have had some quality to your life since starting chemo.”  Don’t get me wrong, this is a wonderful man and a wonderful doctor for me, BUT he has been trained to treat based on statistics and his own experience.  Obviously, he has a set way of seeing the course of this disease progress in a person.  And that path is extremely bleak.  I had only a 15% chance of being alive in 5 years after the 2nd diagnosis.  I don’t know what the number drops to with a 3rd diagnosis. 

I do know this... on a day where I felt extremely sad, defeated, cheated, and puzzled, the divine sent me a message through that sports cast.  I rarely hear sports casts that have odds given during the play by play of the game, in fact I don’t think I have ever heard a sports report like that.  And to hear it on a day where I experienced such a blow and to have those two teams beat the odds of a 0.2% chance of both winning.  I’ll take my 15% and run with it and feel it’s plenty sufficient.  More important I’ll believe the message was specifically for me, sent by the universe, to remind me to trust in the process and journey, and know that I am fine and will be fine with my divine guidance.  

I quote Mark Nepo from The Book of Awakening, “It seems our ability to be authentic and free can’t touch us until we breathe our way below the twitch of our patterning.  Often, this requires outlasting the anxiety of needing to catch or fix what comes our way, so we can truly respond from the center of our being.”  

I wrote most of this post the day it happened, but decided not to send it immediately.  As I reread it today I feel I’ve done what Mark Nepo describes, I’ve outlasted the anxiety, and can feel, from deep within, that I am fine.  I’ve thoroughly enjoyed myself the past week visiting with my cousins out of state and feel especially upbeat, health, and happy.   I write this from my cousin’s house in Idaho, overlooking a lake with the beautiful reflections of the trees shining through the water and truly feel the I Am!  

Please think of me as this happy and healthy Denise during the coming week as I go for another blood test and an appointment with my surgical oncologist.  

Love, gratitude, and health to all of you and all the support you continue to pass my way.

Denise

Is the Glass half full or half empty?

10/8/2013

In what realm do you live your life?  Do you truly live in the reality, seeing things through practical, black and white eyes?  Or do you live more in the realm of intention, where you assume the state or situation that you dream to be in?  Maybe you live with both of these working for you at different times.  Over the past few years I’ve learned that I live more in the dream realm with believing things are what I want them to be rather than what they may actually be. 

Maybe it’s not at all the actual state that we are in, but in how we choose to view each day and event in our lives.  Unlike many, I’ve viewed cancer as a gift.  Maybe not a gift I want to keep on giving, but a gift nonetheless.  Recently, a friend made a comment of how my life has been a series of tragic events over the past few years and how sad she is for me.  It shocked me a bit to hear her say this, because I never really saw it that way.  Yes, some unfortunate things have happened, but I still feel I have a great life.  I don’t feel my life is great because of what happens or doesn’t happen in my life, BUT because of who I am and how I choose to handle what life events occur.  

I’ve had a couple of things recently test my Polly Anna view on things.  A member of our survivor group recently passed, after a 10 year struggle with ovarian cancer.  As a board member of the Ovarian Cancer Alliance of Central California, I attended an Ovarian Cancer celebration dinner the last week of September (September is Ovarian Cancer Awareness Month).  I didn’t know many of the women at the dinner and I quickly became aware that many in this group have had quite a struggle with the disease.  At least 5 of the 15 women at the dinner were “typical” ovarian cancer patients.  They don’t really talk of their first diagnosis or a recurrence, the way I do.  They speak of being in treatment on and off for the last 5 or so years.  One woman had been in treatment for the last 8 years and spoke about the chemo she was currently taking was the only one remaining that she had not used.  She said, “If this one does not work, that’s it.”  I quickly became panicked and wanted to leave, but I had rode there with someone else. 

By the time I reached home I was deep in fear mode.  I doubted my dreamy perspective and way of dealing with things.  I thought that maybe I should be looking at my situation more realistically, rather than always being quick to assume that I’ll be an outlier of the statistical odds.  As a Nurse Practitioner I know that what these women described is the most common course of the disease.  As a dreamer, I didn’t want to believe that it could happen to me.  I was truly rattled to my core and cried myself to sleep that night and woke up the next morning crying again.  

I’ve been put to the test again today on how I view my life and situation.  I have to admit that I’ve been living in fear all day which is why I’m choosing to write today.  My hope is that by writing out my thoughts and sharing with others, that I will change my perspective on how I’ve been thinking all day.  Please don’t excessively worry about what I’m sharing, because I know that if you contact me in the next 24-48 hours I will have already changed my perspective back to my Polly Anna approach and will be viewing today as just a tiny blip in the journey.  Today may actually be the reminder I need, NOT to live in the mode of fear, and simply BE! 

I have blood work done every 4 weeks to check my tumor markers.  This is a way for the oncologist to monitor if cancer cells are growing again.  It is not the most reliable of tests, in that many other conditions in the abdomen can elevate the number.  While I was in chemo, my numbers dropped lower than anything my oncologist had ever seen.  So I knew that after chemo the numbers would go up some, but there is no way to know how high they will increase before leveling off.  The level maintained in August at 4.  The number increased slightly in September to 8 and I hoped this would be where it leveled off.  This week’s number was 12.  With perspective, I realize this number is still very low but it has me rattled.  Part of the issue, is that I don’t have the experience of having the level checked and seeing fluctuations without any significance.  My only experience with fluctuations was the number increasing, starting the fall of 2011, which ultimately showed the cancer had recurred.  

I’m left to redirect my feelings on this matter, away from fear, and adjust my outlook to remember where I am at today.  I am alive, first and foremost.  I am enjoying life.  I am feeling well.  I am completely impassioned with what I envision for my future. I am ultimately grateful that the lab test is NOT showing a huge elevation.  I will continue to be faithful, to all that I do, that I believe is helping me to achieve a greater state of health.  I will, also, continue to write because I enjoy sharing with all of you and I am deeply interested in hearing how my thoughts help you to experience just how precious it is to live our lives together.  

Thank you for being in my life and interested in living to the fullest.  Here’s to being the ultimate optimist.  

Inspiration, what is your source?

10/3/2013

You never know how, why or when you may inspire someone.  I’ve been physically active my whole life.  At one time I even ran 2 marathons and did a sprint triathlon.  As far as I know, this did very little to inspire people to action.  It may have inspired them, but inspiring to the point of action is so much more.  Then comes 2010, when I get cancer.  During this time I regularly blogged about the importance, FOR ME, to somehow muster the courage to walk at least to the neighbor’s house and back.  I walked almost daily, regardless of how weak I was.  At times it took someone on both sides of me to help hold me up.  

Now, my cousin declares she is doing her first 5k (at the age of 42) because I inspired her to be physically active.  I am so happy for her and grateful for her doing it.  Yet, I laugh, that in my weakest, least physically active time in my life I’ve inspired someone else to be physically active.  

The gifts don’t usually come packaged as we would expect, right?  And, as most wonderful things in life, the serendipity here is that now that she notified me of signing up for the 5k, I feel more motivated to try to increase my physical activity.  Give and Take is so beautiful.  Thank you Melanie!!!!

If you feel like it, share what inspires you....

Birthday Expectations

9/18/13  Birthday Expectations

First let me say thank you for all the wonderful birthday wishes and comments.  Here are some thoughts that I typed up on my birthday that I thought I would share. 

I wake up with no plans except a dental appointment which should actually count as negative points (no offense Dr. Trueb and staff).  I trusted it would all come together, but as the morning went on I had doubt.  I had a birthday text waiting for me upon rising (thank you Jan Turner-Davis) but nothing on Facebook.  Mom had a birthday card on the kitchen counter but she wasn’t home (or so I dramatized).  My dad, sister, and brother-in-law were all in Oregon.  

Unfortunately, I have to admit I expected more.  As the morning progressed I began to try to put together a plan of what to do.  I love to play BINGO but do it rarely and thought of going to the Indian casino an hour away but found out there was no BINGO tonight.  Mom kept saying, “Whatever you want to do, let me know.”  But not much was coming to mind.  Part of the issue was, I was low on energy.  I just spent the past 5 days traversing the states of Oregon and Washington for my niece’s college soccer team and sightseeing with my family.  I kept telling myself that I didn’t need anything to do ON my birthday, because I had a lovely day in Seattle the day before.  That should fulfill the birthday celebration, right? Well, for me it wasn’t.  By this time I had a couple of calls and emails and was being asked, what am I doing fun for my birthday and I had no good answer, other than a dental appointment. BAD!  The pressure set in to make it a FUN day.  

I contacted Jacqueline about going to Emeryville to hang out with her.  By the time I finished at the dentist, I didn’t feel like doing anything.  That appointment was enough to wipe me out.  A few other ideas floated by, but nothing took hold.  I resolved to being okay with doing nothing and just relaxing.  I have never been a huge Facebook person, but found today it was the perfect medicine to help me feel like I was spending my birthday with friends.  I posted about the meaning of birthdays on my blog and my FB page and the responses began to flow in.  

One response in particular excited me, it was from the gentleman who farms my land stating they were harvesting my grapes tonight and I could spend my birthday celebrating at the harvest with a glass of wine.  HOW PERFECT IS THIS!!!! In my excitement I quickly sent out an email and post via FB to invite others to join.  My grandiose mind quickly visualized many friends being able to attend with the last minute invite.  As I write this it is 30 minutes before the wine party start time and mom has put together a basket of goodies, we have several bottles of wine chilling and no one yet who RSVP’d they could attend.  I surrender to the outcome and pleasure in the excitement of what it could be rather than what it is. 

Despite the low attendance at the wine birthday fest (1 person, besides Jerry the farmer, Mom, and I) it was a lovely evening.  While waiting for the “crowd” to arrive I tinkered in my sister’s garden, fed her chickens and collected the eggs, cut a bouquet of Dahlia’s and enjoyed being in nature during the harvest.  Shortly into the evening, Jerry pointed to the sky.  The Harvest/Full moon was rising.  How perfect.  It was so beautiful and I felt joyfully satisfied.  It did turn out to be a perfect birthday.  I no longer take birthdays for granted and want each day to be special, but especially my birthday.  I appreciate all of you helping to make it great!

Birthdays!

9/18/2013

Birthdays!

Birthdays bear different meanings for all of us, and present varying significance at various times in our lives.  When we are young, we usually look forward to our birthday and especially to the party and gifts.  Their are milestones in birthdays: reaching a 2 digit numbered age, becoming a teenager, at 16 to get our driver’s license, 21 to be legal, and then by the decades at 30, 40, 50...and for some 100.  During mid life the birthday may be more of a dread for some.  It seems after a certain age, though, there is a sense of accomplishment in reaching each birthday and the birthday becomes a celebration once again, even something to be proud of in making it so far in advance age.  

Since having cancer, I view birthdays differently, more similar to the advanced age person, as if each birthday is a huge accomplishment.  It no longer is taken for granted and truly becomes a day of celebration.  Although, each day after surviving cancer can be experienced as a day of celebration. Sadly, I used to dread my birthdays.  Partly, due to my high expectation of it needing to be an EXTRA special day.  In my 20’s, it was a huge reminder of still being single beyond the age that I thought I would marry.  Then after marrying, it became a reminder day that my biological clock was ticking and I had yet to have children.   In many ways, cancer changed my views of birthdays from dread, to yet another milestone.  

I sit today in an odd mood.  It’s my 42nd birthday.  At the point that I turned 39 I knew there was something terribly wrong with me, but didn’t know what.  Shortly, thereafter, I was diagnosed with cancer for the first time.  My 40th birthday was reason to celebrate in a colossal fashion for it being the 40th and for it being my first birthday post cancer/surgery/chemo.  My 41st birthday was challenging.  I worked that day and none of my co-workers even knew it was my birthday.  I experienced a fatigue that plagued my body so intensely that it was a struggle to even move the computer mouse at my desk.  Once home that night I had a meltdown and told my mom, “I’m pretty sure I have cancer again.”  Working in the medical field for years, one of the most common complaints is fatigue, but, for me, there is no other level of fatigue than what cancer brings to your body.  My 41st birthday was one of those days that just to exist was too much effort.  

Today, on my 42nd,  I am alive, healthy, and pretty well emotionally.  Part of me desires to have something fun and joyful to do.  Part of me is completely at peace with having nothing to do and to just BE!  I cherish the joy I see in everyday, including today.

“I have been born again and again and each time, I have found something to love.” Gordon Parks

I believe I have been born again and again throughout the milestones in my life.  I look forward to the new path taking place in me now as I allow the guidance of the next steps to be birthed.  Happy Birthday to all of you, and please see joy in something today as a birthday gift to me!